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Launch of HPVCA's Emerging Science Webinar Series: Emerging Immunotherapies & Clinical Trials for HPV Cancers
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This past November, HPVCA launched the Emerging Science Webinar Series, starting with a 75-minute live-streamed panel on the latest breakthroughs in immunotherapies and ongoing clinical trials for HPV-related cancers.
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The Emerging Science Webinar Series was created as a way for HPVCA to grant patients and caregivers the opportunity to hear directly from trusted doctors on HPV cancer-specific treatment topics. This series is designed to raise awareness and deepen knowledge on critical topics such as HPV prevention and outreach, early detection of HPV-related cancers, emerging immunotherapies and clinical trials, survivorship support, and other advancing technologies. Be on the lookout for future webinar dates that will host a range of featured speakers, with audience questions incorporated into the speakers' presentations. The live sessions are also archived, transcribed, and broken down into Q&As for continued viewing on our website in the coming months.
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Upcoming Emerging Science Webinar Series Sessions:
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- HPV Prevention, Access, & Outreach; Strategies to Improve Care - March 5th, 2025
- Panelists include:
- Alayna Tress – Director of Patient Advocacy at PepGen & HPVCA Industry Relations Advisor
- Heather Brandt, PhD – Director of the HPV Cancer Prevention Program at St. Jude
- Dr. Jana Shaw, MD, MPH, MS, FPIDS, FAAP – Pediatric Infectious Disease Specialist, SUNY Upstate University Hospital
- Marissa Malchione, MS – HPV Initiative & Global HPV Consortium at Sabin Vaccine Institute
- Susan Vadaparampil, PhD, MPH – Professor and Associate Center Director of Community Outreach and Engagement at Moffitt Cancer Center
- Jane Grover, DDS, MPH – Senior director of Council on Advocacy for Access and Prevention & HPVCA Medical Advisory Board member
- Survivorship Support - April, 2025
- Infection & Early Cancer Detection - July, 2025
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Make An Impact With Your Donation!
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What are you doing to prevent HPV related cancers?
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Your support helps HPV Cancers Alliance drive awareness, education, and advocacy to eliminate HPV-related cancers. Here’s how your donation makes a difference:
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- $25 – Expands education and outreach by distributing critical HPV prevention and early cancer detection materials at PRIDE events, empowering the LGBTQIA+ community with lifesaving information.
- $50 – Provides a compassionate peer-to-peer support call for individuals newly diagnosed with HPV-related cancer, connecting them with a survivor who can offer guidance, resources, and encouragement.
- $100 – Supports our Healthy Youth, Healthy Future initiative by funding young advocates' training on cancer prevention and equipping them to engage with legislators in support of the Prevent HPV Cancers Act.
- $250 – Funds a community-based HPV awareness campaign, helping trained advocates educate their communities on prevention, screening, and the importance of early detection.
- $500 – Allows 20 participants to attend a session in our Emerging Science Webinar Series, where experts share the latest innovations in HPV prevention, immunotherapies, and patient advocacy—completely free of charge.
- $1,000 – Provides comprehensive HPV education and stigma-reduction training for 20 healthcare providers, ensuring more patients receive informed, compassionate care and better access to prevention resources.
Every dollar helps advance research, advocacy, and support services that protect future generations from HPV-related cancers. Join us in making a lasting impact!
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Donate Today and see how your support directly impacts our programs and communities.
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Interview With Dr. Geoffrey D. Young
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Chief of Head/Neck Surgery & Physician Lead of Quality/Safety at Miami Cancer Institute
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This month, we interviewed Geoffrey D. Young, MD, PhD, FACS, FSSO, an expert in treating head and neck cancers, including those affecting the mouth, throat, larynx, thyroid, and salivary glands. He began his career at the Mayo Clinic before being recruited to build a head and neck oncology program in Miami. Now involved with Florida International University (FIU), Dr. Young continues to advance patient care through innovative techniques like transoral robotic and laser microsurgery, ensuring comprehensive, multidisciplinary treatment for individuals facing HPV-related cancers.
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Key Takeaways
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- There Have Been Tremendous Advancements in Transoral Robotic Surgery Methods- Dr. Young explains, “new robotic surgeries have changed the landscape of how doctors are able to surgically treat patients with head/neck cancers and prevent the need for radiation/and or chemotherapy entirely in some instances.”
- Signs/Symptoms To Be Aware Of - “If there is a neck mass that persists for more than 30 days, then [you] should probably have it checked out. A neck mass in an adult is likely something that needs to be assessed or biopsied.” Dr. Young also says to be aware of “changes in ability to swallow, change in voice, difficulty swallowing, painful swallowing, or coughing up blood. Many patients are asymptomatic in the throat until it becomes a size that interferes with functionality.”
- Preventative Care is Key - “It is meticulous - making sure you do your general health care [screenings]. Make sure you’re seen once a year by your family physician. If you palpate something on your neck that wasn’t there before, have it looked at”.
- We Need To Better Understand Recurrent Respiratory Papillomatosis (RRP) - Dr. Young is a dedicated advocate for Recurrent Respiratory Papillomatosis (RRP), board member of the RRP Foundation, and a father to a son diagnosed with Juvenile-Onset Recurrent Respiratory Papillomatosis (JORRP). RRP is a rare condition in which benign tumors caused by HPV grow in the vocal cords or airway. “Regarding RRP, we have some educational gaps…we should be eliminating the need for surgery, [and] providing alternatives”, Dr. Young says.
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To read the full interview, click here.
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Research & Medical News
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The FDA Has Granted Fast Track Designation to CRB-701 for the Treatment of Relapsed/Refractory Metastatic Cervical Cancer
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Corbus Pharmaceuticals, an oncology and obesity company, announced that the FDA has granted Fast Track designation to CRB-701, a next-generation antibody drug targeting Nectin-4, for the treatment of relapsed or refractory metastatic cervical cancer. Corbus recently completed enrollment of its Phase 1 clinical trial that is being conducted in the U.S. and Europe. The three-part Phase 1 trial is evaluating the safety, pharmacokinetics and efficacy of CRB-701 in patients with advanced solid tumors known to be associated with high Nectin-4 expression.
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Research Study Enrollment Opportunity: Sexual Health & Rehabilitation Online (SHAREonline)
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Are you a woman who is bothered by sexual health changes after cancer treatment? Dana-Farber Cancer Institute is conducting a research study online to help women (ages 19-49) manage sexual health difficulties after cancer.
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- A single, online educational session to address common changes in sexual health after cancer.
- Participants will be randomized to either a group-based or individual self-management-based session.
- Participants must complete a brief online questionnaire.
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If you would like to participate or learn more about the study, contact [email protected] or call a study coordinator at 617-582-8260.
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In The News
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HPVCA at IPVC 2024
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Our Executive Director Lillian Kreppel represented HPV Cancers Alliance at the 36th International Papillomavirus Conference (IPVC 2024) in Edinburgh, UK on November 12-15, 2024, contributing to two impactful panels. In "Tapping into the Power of Lived Experience," she highlighted how personal stories drive HPV awareness, ethical engagement, and policy advocacy. In "Communication Competence," Lillian explored trust-building communication, cultural influences, and strategies to improve healthcare practitioner awareness and community outreach. Her contributions underscored our mission to empower and educate for a future free from HPV-related cancers.
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American College of Gastroenterology Grand Rounds: Anal Cancer - HPV The Silent Vector
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HPVCA Executive Director Lillian Kreppel Highlights HPV Advocacy at NCCN Summit
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In December, our Executive Director Lillian Kreppel participated in the NCCN Patient Advocacy Summit at the National Press Club in Washington, D.C. During her presentation, Lillian shared her personal journey as an HPV-related cancer survivor, underscoring the critical role of self-advocacy in navigating healthcare. She highlighted the need for greater awareness of HPV and its connection to six cancers, encouraging individuals to stay proactive with regular screenings and exams. Lillian’s impactful message reinforced the importance of education and advocacy in preventing HPV-related diseases and supporting early detection efforts.
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Feature Podcast Episode: Gastro Girl - The Original Digestive Health, Patient Focused Podcast
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Anal cancer is more common than many people think, but early detection can be lifesaving. As we know, stigma often prevents individuals from seeking care for early warning signs. Our own Marcia Cross and Lillian Kreppel recently joined Gastro Girl, the original digestive health & patient-focused podcast, to talk about the link between HPV and anal cancer, promote preventative care, and dismantle the stigma surrounding this condition. Gastro Girl is a collaboration with the American College of Gastroenterology’s Patient Care Committee. Listen now on Apple Podcasts, Spotify, iHeart Radio, Youtube, or Audible.
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2025 CERVIVOR - Cervical Cancer Summit - Washington, D.C.
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HPV Cancers Alliance attended the 2025 Cervical Cancer Summit, powered by Cervivor, Inc., celebrating their 20th anniversary. The Summit brought together patients, survivors, researchers, and advocates to discuss the critical fight against cervical cancer. Key takeaways included the importance of the patient voice, the power of storytelling, the need for health equity, and the tools we already have to end cervical cancer. HPVCA is proud to continue working alongside passionate advocates and experts to reduce the global impact of cervical cancer.
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HPVCA's Lillian Kreppel Honored with The American Cancer Society's HPVRT's Lived Experience Ambassador Award
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The American Cancer Society’s National HPV Vaccination Roundtable has awarded their annual Lived Experience Ambassador Award to our own Executive Director Lillian Kreppel. This award honors HPV cancer survivors who have made a significant contribution to advocate locally and nationally in an effort to spare families the unnecessary pain, stress, and financial burden of a HPV-related cancer diagnosis. On Lillian’s recognition, the American Cancer Society’s National HPV Vaccination Roundtable said, "Lillian is a force and inspiring us all to take action to prevent HPV cancers. Thank you Lillian for sharing your story and for everything that you do. Thank you for being a phenomenal member, partner and champion of the work. We could not do all that we do without your volunteer leadership and expertise.”
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UPCOMING EVENTS
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Mark Your Calendar: March 4th is International HPV Awareness Day!
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Get ready for HPV Awareness Day on March 4th as we launch an exciting campaign to educate and empower communities about HPV and related cancers. Together with our incredible mission partners, leading doctors, HPV cancer survivors and more, we’ll highlight what they believe people must know about prevention, early detection, and treatment by releasing a series of educational content. Stay tuned for impactful resources and stories aimed at eliminating HPV-related cancers for good!
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MISSION PARTNER ANNOUNCEMENTS
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Anal Cancer Survivor Story
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HPVANDME is pleased to share their latest video featuring Cindy Southwell, an HPV anal cancer survivor from Florida who was originally diagnosed with cancer at age 59 in 2019. Cindy is wonderfully forthcoming about her cancer journey and shares her story to normalize the conversation around HPV related cancers and support other patients so they know what to expect during and after treatment.
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Society for Women's Health Research Launches #SWHRtalksHPV Educational Series
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Why is the HPV vaccine recommended for pre-teens? I am older than 26, can I still get vaccinated for HPV? Where and how can I get the HPV vaccine? Get these questions and more answered with the #SWHRtalksHPV Video Series! This short, informative series was created to help parents and guardians learn about the HPV vaccine and cancer prevention by sharing facts and insights from immunization experts as they answer key questions relating to the HPV vaccine. Explore the SWHR HPV Vaccine Social Media Toolkit to join the conversation today.
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Us. Vs. HPV Global Webinar Now Streaming
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Join NCCN's First Clinical Trial Webinar on February 28th
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The National Comprehensive Cancer Network is conducting their first Clinical Trials Webinar on February 28, 2025, at 10:00 am EST. Join trusted experts from a patient advocacy group and two leading cancer centers to learn about clinical trials and help understand the purpose of clinical trials, the role of clinical trials in cancer treatment, and how to access clinical trials and decide if one may be right for you. Register Now!
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MSK's 3rd Annual HPV-Related Cancers Virtual Lecture Now Live
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INTRODUCING
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Ann M. Freeman, DO
Dr. Freeman is a board-certified gynecologist practicing for over 20 years in Allentown, Pennsylvania. She earned her undergraduate degree in Chemistry from LaSalle University in Philadelphia and her medical degree from the Philadelphia College of Osteopathic Medicine. Her residency in Obstetrics and Gynecology was completed at St. Luke’s University Health Network in Bethlehem, PA. She is a fellow of the American College of Osteopathic Obstetricians and Gynecologists.
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She is a Certified Menopause Practitioner and is a founding member of the St. Luke’s Menopause Group. She has sat on several menopause panels and served on the AMGA Osteoporosis Collaboration. She and the Menopause Group offer a series of patient centered lectures on various topics in Menopause. She lectures the Family Medicine residents on topics in Gynecology and has twice received the Specialist of the Year teaching award from the St. Luke’s Coventry Family Medicine Program.
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Thank You To Our Sponsors
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Our Mission Partners
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We know that an alliance of HPV and HPV-associated cancer organization will amplify the common goal of raising awareness, spreading knowledge, and in the end, saving lives. We support our mission partners by co-sponsoring and supporting their events through cross-promotion and by meeting to discuss strategies that further our shared mission.
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Thank you to our mission partners!
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